What do you think?
Rate this book
154 pages, Paperback
First published May 16, 2016
“I have already told you with what care they look after their sick, so that nothing is left undone that can contribute either to their ease or health: and for those who are taken with fixed and incurable diseases, they use all possible ways to cherish them, and to make their lives as comfortable as possible. They visit them often, and take great pains to make their time pass off easily: but when any is taken with a torturing and lingering pain, so that there is no hope, either of recovery or ease, the priests and magistrates come and exhort them, that since they are now unable to go on with the business of life, are become a burden to themselves and to all about them, and they have really outlived themselves, they should no longer nourish such a rooted distemper, but choose rather to die, since they cannot live but in much misery: being assured, that if they thus deliver themselves from torture, or are willing that others should do it, they shall be happy after death. Since by their acting thus, they lose none of the pleasures but only the troubles of life, they think they behave not only reasonably, but in a manner consistent with religion and piety; because they follow the advice given them by their priests, who are the expounders of the will of God. Such as are wrought on by these persuasions, either starve themselves of their own accord, or take opium, and by that means die without pain. But no man is forced on this way of ending his life; and if they cannot be persuaded to it, this does not induce them to fail in their attendance and care of them; but as they believe that a voluntary death, when it is chosen upon such an authority, is very honourable.�
It’s often said that life is short. But life is also simultaneous, all of our experiences existing in time together, in the flesh. For what are we, if not a body taking a mind for a walk, just to see what’s there? � I am a girl and I am a dying woman. My body is my journey, the truest record of all I have done and seen, the site of all my joys and heartbreaks, of all my misapprehensions and blinding insights. If I feel the need to relive the journey it is all there written in runes on my body. Even my cells remember it, all that sunshine I bathed in as a child, too much as it turned out.
"She was in a nursing home when she died, a place of such unremitting despair it was a test of my willpower just to walk through the front door. The last time I saw her, I stood helplessly by while she had her arse wiped clean by a young Japanese nurse. My mother was clinging on to a bathroom basin with all of her meagre strength, while the nurse applied a fresh nappy to her withered behind. The look in my mother's eyes as she turned and saw me watching reminded me of an animal in unspeakable torment. At that moment I wished for death to take her quickly, to stop the torture that had become her daily life. But still it went on, for a dozen more months, her body persisting while her mind had long since vacated the premises. I could not think of anything more cruel and unnecessary. I knew I had cancer by then, and a part of me was grateful. At least I would be spared a death like my mother's, I reasoned. That was something to celebrate."
”My mother took me out for a reef walk, to the very edge, where the reef drops away and the water changes from turquoise green to blue-black. The surf out there was pounding, the wind was blustery, and I wanted us to turn around and go home. But my mother stood firm, a wild grin on her face, her hair whipping around her head, her arms outstretched.
“Just look where we are!� she shouted, spinning around to take in the sweep of the beach behind us. I realized then how far we had walked, how tiny we must look from the land, two dots against the horizon. And I felt a surge of love for my mother, as if at that moment I might lose her to a rogue wave or a shallow swimming shark, for I knew they were out there cruising in the black water, just metres away.
“The sun's going down,� I said.
“Time to go.�
And so we made our way in, the tide rising around our feet and the sky turning mauve then orange then molten yellow.�
”In fiction you can sometimes be looser and less tidy, but for much of the time you are choosing what to exclude from your fictional world in order to make it hold the line against chaos. And that is what I'm doing now, in this, my final book: I am making a shape for my death, so that I, and others, can see it clearly. And I am making dying bearable for myself.
I don't know where I would be if I couldn't do this strange work. It has saved my life many times over the years, and it continues to do so now. For while my body is careering towards catastrophe, my mind is elsewhere, concentrated on this other, vital task, which is to tell you something meaningful before I go..�