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Kaethe's Reviews > Autism in Heels: The Untold Story of a Female Life on the Spectrum

Autism in Heels by Jennifer O'Toole
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really liked it
bookshelves: autism, banned, disability, gender, kids, memoir, mental-health, nonfiction, parenting, science

This is kind of hard to nail down.

When she's talking about her research and giving her chick list of how female autism can look, she is compelling and funny and you understand why she would be a great speaker and why her Asperkids books are so popular.

And then there are segments on bullying she endured in school and on intimate partner violence and that is just excruciating because it is so visceral.

But it is also hard to read in other ways that aren't important, but just a little grating. Bits that pulled me out of the narrative entirely. At least a couple of times she mentions her IQ, which is pertinent in that one reason females with autism are not evaluated and if evaluated, not diagnosed, that is, they ate overlooked in part because they're smart, often very verbal, and well behaved. So it makes sense to pull from her life to illustrate a concept. Yes. But she brings it up more than once and doesn't give the number. Maybe it seemed like it made more sense to avoid a specific number in favor of a range, which is fine, but she doesn't exactly do that either.

Likewise, in the school section, she talks about her mom being kind of flabbergasted at stuff the child doesn't know or doesn't understand, stuff which seems so obvious to the mother. So yeah, her mother found her odd and without a recognized female phenotype of autism, the mother has no context for why her only child is like this. Again, this is totally central to the point of the book: Cook is alone with her mom for years and she doesn't have friends and her mother doesn't get her, so she throws herself into academics and performing and such for validation. I get it. But more than once she mentions being this performer on command for adults, and how it pissed off other kids the way she was showing off. Every time this comes up she gives a "but it wasn't showing off" because of the adult validation imperative. Multiple times, which I did not count. Until I am just gobsmacked that she doesn't understand that it doesn't matter to the other kids what the motivation is or who asked her to do it: it is still, explicitly, well within the connotation and denotation of "showing off." To be fair, this is one of the traits of autism: not getting it, I mean.

Last one, several times she refers to the things that other people are astounded that people with autism don't just understand. Things which people can't even explain properly because they do just get it, and it's never been explicit anywhere. And autism spectrum or not, that's always a thing that fascinates people. But we all assume other people are like us, so you might not realize until your 50s, to take an example at random, that when people say "I could see it in my mind" they aren't being metaphorical. They literally mean that they have a clear, precise image in the head. If you're aphantasic and have no visual imagination, you might not have realized that other people could really do such a thing. Right with the concept, and she talks about this in different anecdotes. And then, when she's writing about something, she says in effect, people with autism can't do this kind of detailed strategizing and tactical planning. Whoops! I have no idea how common or rare this ability is, but there are definitely people with autism who can do that. I can't, but some people are really good at it, which comes up a lot in gaming.

Okay, I am done with that, it's just some things that vexed me.

More importantly, when differentiating between the boy and girl phenotypes, Cook describes looking at the criteria and working out what the trait in question is for and then looking at things girls do that serve the same purpose even if it isn't "lining up their cars" or "studying traintables" and it's really some brilliant thinking on her part, and it is described so clearly that you get it. Girls without brothers probably don't even have cars. It's elegant.

There's a lot of good stuff about things she did for her kids when they were diagnosed, and stuff she does for others. I think she probably is a fabulous mentor for people with autism, and an amazing example of people studying what they think is important, rather than what researchers think is important from the outside.

Library copy
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Reading Progress

August 9, 2023 – Started Reading
August 9, 2023 – Shelved
August 12, 2023 – Shelved as: autism
August 12, 2023 – Shelved as: banned
August 12, 2023 – Shelved as: disability
August 12, 2023 – Shelved as: gender
August 12, 2023 – Shelved as: kids
August 12, 2023 – Shelved as: memoir
August 12, 2023 – Shelved as: mental-health
August 12, 2023 – Shelved as: nonfiction
August 12, 2023 – Shelved as: parenting
August 12, 2023 – Shelved as: science
August 12, 2023 – Finished Reading

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