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Face Equality Week � calling for respect

CW: ableism, death threats, suicide. Lifeline: 131114.

This Face Equality Week, I call for people with facial differences to be treated with equality, dignity, respect and safety.

I don’t want people with facial difference to be discriminated against, excluded, ridiculed, forced to reveal medical information or relive traumatic events to satisfy strangers� curiosity, or endure emotional or physical violence because of fear, pity and prejudice around facial difference.

I have a facial difference caused by a skin condition called Ichthyosis, and through my life I’ve: :

been asked to leave a store

been refused taxi rides

been laughed at and ridiculed

been photographed by strangers

been stared at

encountered children and adults who a physically react because they’re scared

missed out on career progression because of implicit and explicit bias

been asked curious and intrusive questions

had my photo misused on Reddit and by the media

endured countless instances of online abuse including death threats and statements like I should be dead

been seated away from other diners at restaurants

been ignored in stores

been treated as though I’m contagious

read, seen and watched media and art that disrespects people with facial differences and skin conditions

had people tell me they’d kill themselves if they looked like me

been told it’s great someone like me gets out of the house, and isn’t locked away

seen people with facial differences and skin conditions physically and mentally tormented, feeling unsafe where they live.

Enough of this disrespect, discrimination and othering. I’d also like to see hate crime and hate speech laws extend to people with facial differences � protecting us and punishing perpetrators � with fines and community service.

I’m still here. We’re still here. We exist, and we deserve to be seen. I’ve tagged some amazing people with facial differences for you to follow on .

More information:

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Image: a selfie of Carly, a woman with a red face and short dark curly hair, wearing a pink cardigan over a dress, & a blue flower brooch & red flower brooch. She’s smiling.

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Published on May 14, 2025 03:19
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